Works Cited

http://learn.genetics.utah.edu/content/disorders/whataregd/counselors/

http://nervous-system.emedtv.com/tay-sachs-disease/tay-sachs-disease.html

http://lateonsettay-sachs.org/index.php?p=ct&pgid=1

http://kidshealth.org/parent/medical/genetic/tay_sachs.html

http://en.wikipedia.org/wiki/Tay%E2%80%93Sachs_disease (picture)

http://tay-sachsdisease2.blogspot.com/2011/11/how-is-disease-diagnosed.html

http://www.beltina.org/health-dictionary/tay-sachs-disease-symptoms-treatment.html (picture)

http://tay-sachsdisease2.blogspot.com/2011/11/what-are-physical-symptoms.html

http://www.curetay-sachs.org/dream.shtml (picture)

http://denisewilbon.blogspot.com/ (picture)

http://runacrossalabama.blogspot.com/2010_05_01_archive.html (picture)

http://tay-sachsdisease2.blogspot.com/2011/11/organizations-that-can-help-family-cope.html

http://tay-sachsdisease2.blogspot.com/2011/11/how-possible-is-it-that-cure-will-be.html

http://www.ldnz.org.nz/news_and_issues/conference_reports/national_tay_sachs_and_allied_diseases (picture)

Cure?

There is no possible cure for Tay Sachs disease as of now unfortunately. Doctors are experimenting with enzymes replacement therapy, but it will take years for an actually cure to be found. All we can do is be patient and have hope that a cure will come soon.

  

Web Links

Here are a couple of organizations that can help a family cope with a child's disorder such as Tay Sachs Disease:

•  https://www.inspire.com/groups/rare-disease/ (NORD Rare Disease Support Community)
• https://www.inspire.com/groups/genetics-and-birth-defects/ (Genetics and Birth Defects Support Group)
• http://www.mayoclinic.org/ (Mayo Clinic)

Everyday Life

For the first couple of months the baby's growth is normal. The symptoms start to show and get worse as years go by. When the symptoms are fully in action the quality of life is not so pleasant to the child or family.

Treatments

Tay Sachs is a very deadly disease and cannot be treated to help or save a child. That is a really sad thing to know because they do not have the opportunity to live past the age of five.  

Life Expectancy

The life expectany of a child with Tay Sachs Disease usuaully lives to be about four or five years old. If a child lives longer than that with this disease is truly a blessing.

Physical Symptoms

Physical symptoms of a child with Tay Sachs disease are deafness, blindness, dementia, decreased muscle tone and mental/social skills, listlessness, no motor skills, paralysis, seizures and slow growth. Symptoms usually start to show between three to six months after the baby is born.